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Notice of Annual General Meeting (AGM)
The Motor Neurone Disease Association of South Africa's Annual General Meeting is your chance to hear about our achievements, review our finances, and elect the leadership team that will guide us through the coming year. When: The AGM must be held on the 19th of...
Empowering Individuals with MND Through Genetic Testing: Insights for South African Families
Dr. Liani SmitClinical Geneticist (PathCare) Genetic testing for Motor Neuron Disease (MND) is complex and not yet widely accessible in South Africa. However, it can play an important role in empowering people living with MND and their families by helping them make...
From DNA to Insights: The Neurogenomics Lab Story
Dr. Melissa Nel Neurogenetics & Neuromuscular Disorders Researcher, Department of Neurosurgery, University of Cape Town. The Neurogenomics Lab at the University of Cape Town is on a mission to unlock the genetic signatures of amyotrophic lateral sclerosis (ALS) in...
A Personal Story from Our Community: Monwabisa (Aron) Siswane
When Andrew Jacobs was diagnosed with Motor Neurone Disease, his family’s life changed forever. Among those who stepped in to help was his son-in-law, Monwabisa “Aron” Siswane, a dedicated traffic officer from Worcester. What began as a professional acquaintance in...
Genetics, MND and What It Means for Families
By Romany Sutherland, daughter of an MND patient At the South African MND/ALS Symposium in 2024, we were privileged to hear from Laynie Dratch, ScM CGC, a licensed certified genetic counsellor at the Penn FTD Centre and Penn Comprehensive ALS Centre in the United...