Trusted Partners in Your MND Journey
Connecting you with service providers who understand MND and are committed to delivering compassionate, specialized support when you need it most.
Quality You Can Trust
Our “Friends of MND” are carefully selected service providers who understand the unique needs of people living with MND and offer specialized products, services, or support. These organizations and individuals have demonstrated a commitment to serving the MND community with compassion, expertise, and accessibility.
Every provider in our directory has been vetted through our comprehensive review process, which includes references from MND patients and families, verification of specialized training, and assessment of their understanding of the MND journey. When you choose a Friend of MND, you can trust that you’re working with professionals who truly understand your needs.
We continually monitor feedback from our community to ensure that all listed providers maintain the high standards of care and service that people with MND deserve.
Featured Friends of MND (More Coming Soon)
Medical Equipment and Technology
Access to appropriate equipment can significantly improve quality of life and maintain independence throughout your MND journey. Our verified equipment providers offer specialized solutions tailored to the progressive nature of MND.
LIFTA SA - Mobility and Accessibility Equipment
Supporting the Motor Neurone Disease Association of South Africa
At Lifta, our focus is on helping people live with comfort and independence.
Our home lifts are designed to provide simple, practical solutions that restore accessibility and dignity. With minimal building work, quick installation, and easy operation, these lifts make every floor of the home easier to reach. Each solution can also be adapted to suit the unique needs of the household.
Through our partnership with the Motor Neurone Disease Association of South Africa, we bring not only trusted products but also compassionate support and professional guidance. The goal is to ensure that individuals living with MND remain mobile, safe, and comfortable in their own homes.
With Lifta SA, families have the reassurance that their loved ones can move freely without the daily strain of stairs, creating peace of mind and a better quality of life.
Webiste: www.lifta.co.za
Contact: 080 73 73 73 7
Email: salesadmin@lifta.co.za
Voice Back AAC Tool
Founder of Voice Back: Riya Jain
Communication is fundamental to maintaining connections with loved ones. When MND affects your ability to speak, Voice Back is here to help you continue expressing yourself clearly and independently.
When Riya Jain set out to build Voice Back, her inspiration came from her grandmother, who lived with MND for two and a half years. Riya’s grandmother missed her voice more than anything, and preserving that part of her identity became the driving force behind the project
What is Voice Back?
Voice Back is an AI-powered AAC tool that helps people experiencing voice loss communicate in their own voice. Users upload a short recording of their speech (a current file or a short prerecorded whatsapp sound file), and the app then creates a personalised text-to-speech voice along with an easy-to-use phrase board.
Inspired by her grandmother’s journey with ALS, Voice Back preserve’s identity, dignity, and connection—one voice at a time.
We have included in this newsletter a step-by-step guide that shows how to use the app, making it easier than ever for patients and caregivers to get started.
Special Offer for Our Community: Use the promo code SA to gain lifetime access for free.
Shoprider South Africa - Mobility Scooters and Wheelchairs
Main Website: https://shoprider.co.za/
– About Us: https://shoprider.co.za/pages/about-us
– Contact: (012) 653 1168
– Email: shoprider@icon.co.za
– Address: 70 Jakaranda Street, 13 Diamond Park, Benoni
– Services: Mobility scooters, electric wheelchairs, portable mobility solutions
– Alternative Supplier: https://mobilityscooters.co.za/shoprider/
Nicky's Drive - Vehicle Adaptation Funding
Main Website: https://nickysdrive.com/
– About: https://nickysdrive.com/about/
– Contact: nicky@nickysdrive.com
– Facebook: https://www.facebook.com/nickysdrive/
– Services: Non-profit funding car adaptations for people with disabilities
– Description: Registered NPO (086-364-NPO) assisting with vehicle adaptation funding
Easy Drive WC - Vehicle Modifications and Hand Controls
Main Website: https://www.easydrivewc.co.za
– Hand Controls: https://www.easydrivewc.co.za/Hand-Controls-from-EasyDrive.html
– Contact: 082 452 4639 / 021 851 9592
– Services: Vehicle adaptations, hand controls, lowered platforms, wheelchair access
– Description: Specialists in vehicle modifications for people with disabilities
Specialized Healthcare Services
The Counselling Hub Collaboration
The Counselling Hub has become a vital partner for our community, providing professional counselling services specifically tailored to the unique challenges faced by those affected by MND. Understanding that patients and carers often have different support needs, we offer dedicated monthly sessions for each group.
We recognize that living with MND – whether as a patient or carer – can bring overwhelming emotions and psychological challenges. Some days are particularly difficult, and having access to professional support can make a meaningful difference in managing the emotional complexities of this journey.
Our heartfelt thanks go to Dhrama Brendal and Aliah Dodia, whose professional expertise and genuine compassion have made this partnership invaluable. Their commitment to our community has provided much-needed emotional support and coping strategies for many families.
What This Partnership Provides:
- Structured Monthly Sessions: Two dedicated sessions per month – one specifically for patients (PALS) and one for carers (CALS), allowing for focused, tailored support
- Professional Counselling: Access to qualified counsellors who understand the specific challenges of MND. Contact info@mndasouthafrica.org to register for this service.
- Coping Strategies: Practical techniques for managing stress, anxiety, grief, and the emotional complexities that accompany MND.
- Safe Environment: A confidential, supportive space for sharing experiences and concerns.
To Join Our Group Sessions: Contact us at info@mndasouthafrica.org for information about upcoming counselling sessions.
Find out more about The Counselling Hub:
Email: Info@counsellinghub.org.za
Website: https://counsellinghub.org.za
Phone: +27 (0) 21 462 3902
This partnership ensures that emotional support is always available to our community. You do not have to face the challenges of MND alone.
Becoming a Friend of MND
Join Our Network of Trusted Providers
Are you a service provider who wants to make a meaningful difference in the lives of people affected by MND? We welcome applications from organizations and individuals who share our commitment to compassionate, specialized care.
- Application Requirements
- What We Look For:
- Application Process
- Application Steps
- Benefits of Partnership
- Partnership Benefits Include:
Service providers who wish to join our Friends of MND directory must demonstrate their understanding of MND and commitment to serving our community with excellence. Our application process ensures that everyone listed meets our high standards for care and service.
- Demonstrated experience working with people with MND or similar progressive conditions
- References from MND patients or families you have previously served
- Specialized training or education relevant to MND care and support
- Commitment to accessibility and accommodation of MND-specific needs
- Understanding of the emotional and practical challenges facing the MND community
The application process involves submitting detailed information about your services, providing references from previous MND clients, and participating in an interview with our review committee. This committee includes people living with MND, caregivers, and healthcare professionals who evaluate each application thoroughly.
- Submit detailed service information and credentials
- Provide references from MND patients or families served
- Complete our MND knowledge assessment
- Participate in committee interview process
- Receive directory listing and community welcome
Becoming a Friend of MND connects you with a community of people who may benefit from your services while providing opportunities for specialized training and professional development.
- Featured listing in our comprehensive provider directory
- Connection to community members who need your services
- Access to MND-specific training and educational opportunities
- Recognition for your commitment to supporting the MND community
Networking with other providers who serve people with disabilities