This November, MNDA South Africa will be sharing the voices of our community on the world stage. At the International Alliance of ALS/MND Associations meeting, our Chairperson, Dr Lienka Botha, will present, and in the Poster Hall we will feature a video project with stories from people across South Africa living with MND.
We would love to include your voice. Whether you are a person living with MND, a carer, or a family member, your story matters. By sharing your experiences — the challenges, the small victories, the lessons, or even a message of hope — you help the world understand what it truly means to live with MND in South Africa.
📹 How to participate:
- Record a short video (1–2 minutes) on your phone.
- Introduce yourself and share one message, memory, or reflection that you feel represents your journey.
- Send your video to info@mndasouthafrica.org or WhatsApp it to 083 467 8018 by 20 October 2025.
Your story will travel further than you think — from South Africa to the global MND community. Together, we will show that every stage, every story, and every voice matters.